How do we price life saving drugs?

I’m at a loss for words, except for one, outrageous!

worry-less-journey

blindnessI recently heard about a child who suffers with Retinitis Pigementosa. This is a problem that will cause blindness. A drug company has developed a drug that actually cures the problem. The cost of the drug was the question. Below is a statement about the cost.

A US drugmaker offers to cure rare blindness for $850,000. Spark Therapeutics’ Luxturna will cost $850,000 for a one-time treatment. The gene therapy treats a rare, inherited retinal disease that can lead to blindness.Jan 3, 2018 https://www.cnbc.com/2018/01/03/spark-therapeutics-luxturna-gene-therapy-will-cost-about-850000.html

The child has received the drug. I am not sure if he received it as a test or if somehow it was paid for. Already his vision is improving. The news person was interviewing the person who I think is the owner/ceo?  He was asked how the company set the price on the drug. The answer was so outrageous that I was stunned to hear…

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Published by H. Bradley Colston

l began this ministry, through the promptings of the Holy Spirit, to tell my story in book and film, to the younger generation, by sharing my testimony of having gone through the same struggles, that they themselves may be facing, or may encounter in their futures. T This site, was originally planned to show the progress and process of the vision of the film, I was given, and is dedicated to those that are lonely, hurting, and looking for “Hope”, in what seems like a “hopeless life”, in a “hopeless world”. That being the film's theme...based on my and other's, true stories... It was originally going to be based on the story of MY life, but God also, has other plans, that will now include your stories, along with those same feelings of despair, pain, and the misery, of loneliness and isolation, that comes with the thoughts and feelings, of "not understanding my place in this world". The feelings, of utter isolation, being or feeling neglected by others. Dismissed, misunderstood; possibly, the worst part, and feeling of all… "No direction…very seldom a turn". ...Except, for that little spark of…hope. It was the ONLY feeling. that allowed me, that occasional breath. That life sometimes, afforded . I found HOPE...THEN, the answer....OUR ANSWER... LOVE. And LOVE, has a name. His Name... is JESUS. (I would love to hear your stories, for possible inclusions for the Feature Film. Also, any questions, or concerns, including prayer requests.) Email me: loveisstronger.lovewinsfilm@gmail.com God Bless You. May you find Hope in Him, today. - H. Bradley Colston

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