I’m at a loss for words, except for one, outrageous!
I recently heard about a child who suffers with Retinitis Pigementosa. This is a problem that will cause blindness. A drug company has developed a drug that actually cures the problem. The cost of the drug was the question. Below is a statement about the cost.
A US drugmaker offers to cure rare blindness for $850,000. Spark Therapeutics’ Luxturna will cost $850,000 for a one-time treatment. The gene therapy treats a rare, inherited retinal disease that can lead to blindness.Jan 3, 2018 https://www.cnbc.com/2018/01/03/spark-therapeutics-luxturna-gene-therapy-will-cost-about-850000.html
The child has received the drug. I am not sure if he received it as a test or if somehow it was paid for. Already his vision is improving. The news person was interviewing the person who I think is the owner/ceo? He was asked how the company set the price on the drug. The answer was so outrageous that I was stunned to hear…
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